Tuesday, August 27, 2013

There's No Such Thing As Can't

First of all, I have to say as a parent of an 18 yr. old on the spectrum, there is no cure for autism or aspergers. It is a difference in the wiring in the brain. You can't change that. 

I just lost half the people who wandered to this blog....

Okay. You can't cure it. That doesn't mean that you can't find ways to deal with some of the challenges that aspergers presents (and autism for that matter). But to do that you have to abandon the word CAN'T. 

Can't kills. It kills dreams and hopes. It kills opportunities and chances. So erase it from your vocabulary right now because I can promise you this: you are going to hear that word a lot and you CAN'T buy into it. Your kid doesn't know he can't speak. He doesn't know he can't ride a bike. He doesn't know he can't make friends. Its a bullshit word.

That being said, what can you do? First, you have to toss out "normal" expectations. Those baby books where you record everything? Useless. Make your own with goals that your kid achieves.

My son wanted to learn to ride a bike from the age of four. We tried everything. From the age of seven until he turned thirteen! I tried to teach him. My husband tried to teach him. The neighbor tried to teach him. A family friend tried to teach him. Three separate occupational therapists tried to teach him. When he was thirteen, we began a new round of physical therapy to help him with some motor skills issues. The therapist, a man named Alan, asked my son what he wanted to learn. Ride a bike, J replied. I explained we'd been trying every technique available for years with no luck. When he looked at his feet, he could go forward briefly, but would fall over. If he looked up, he could only go in a tight circle to the left briefly before falling. 

Alan said to leave it up to him. First step? Spinning fast while lying on his side.  This was to improve his balance. They worked on this for several visits. Next, he brought out a bike with HUGE wheels and no pedals. He took him outside and had him just sit on the bike and steer while Alan ran holding the bike upright. When he was able to steer, they added in the brakes. Stop. Go. Stop. Go. Finally, Alan put the pedals back on, but only to get the feel of the pedals under his feet. 

Twice a week for an hour each time, Alan ran around the building with my kid on that bike, as he added in the steps to success. And then they reached the pedalling stage. I stood and watched as they disappeared around the building. And then waited for them to come back around. And when they did J was riding the bike! Six years. 7 adults. Countless techniques...

Alan managed to do it in 2 months.

We never assumed "can't". We just had to find the person who knew the way. It's what you have to do with everything. Our kids can learn, they just need us to find the way. 

So, if you're here reading this and your kid is struggling with something (or you are a person on the spectrum struggling with something), what is it? How can I help? I have 18 years of experience finding new ways to do things. 

Karen

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